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PK Nelson
PK Nelson
PK Nelson
Story
Friends,
Another year, another surgery. Wyatt’s bone graft was not successful last year. A tooth came down and interrupted the building of bone. Repeat surgery has been scheduled for November 6th and we will celebrate Thanksgiving and Christmas with no chewing or physical activities. Hopefully all goes smoothly and the four of us will be on a mountain by New Year’s Day.
As you all know, whenever Wyatt undergoes surgery, Mark and I take part in a race. This year it’s a Spartan Race! We mentally and physically push ourselves to the limit, both in training and on race day to appreciate the pressure Wyatt's little body will endure to heal. The race also gives us an opportunity to raise funds to make a difference. This year our Wyatt has asked that we raise money to help his cousin Charlie find a cure for Duchenne -- I am still crying.
Our nephew Charlie is so much joy. He is smart, funny, can light up any room with his presence and most of all completes our family. Charlie was diagnosed with a life-limiting disease, Duchenne Muscular Dystrophy, in October of 2020. Charlie is missing exons 22-39 of his DMD gene (which codes for a protein that protects muscles from degeneration), a rare mutation on top of a rare disease. He is enrolled in a phase 3 clinical trial of a gene therapy by Sarepta, and his participation is critical to obtaining full FDA approval of this treatment.
Though we hope and believe that this new treatment can help preserve Charlie’s muscles for a few important years, this is just the beginning to give Charlie a long, full life. So much more research and development are needed to find a true cure for this awful disease.
Join our fight to find a cure for our Charlie. Please help us reach my fundraising goal by making a secure online donation and by posting a message of support. Any contribution small or large is greatly appreciated!
Donations made through this platform are secure and will directly support CureDuchenne, a national 501(c)(3) organization dedicated solely to finding a cure for Duchenne. Once you contribute, a tax receipt will be automatically issued to you.
Thank you for your support.
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Cure Duchenne. DAF
Make a difference to the Cure Duchenne through the GoFundraise Fund at CAF America. CAF America is a registered 501c3 public charity in the United States (EIN 43-1634280), and you will receive a tax receipt for your donation. Your donations will go into the GoFundraise Fund for the charity of your choice. CAF America is a global grantmaking organization assisting corporations, foundations, and individuals. We streamline the grantmaking process to eliminate risk and administrative burden. Through our work, we help donors support great causes by assisting them in making strategic, effective, and tax-advantaged grants internationally and domestically. Donations to CAF America become the property of CAF America and CAF America has ultimate control, authority and discretion with regard to its assets. All grants made by CAF America are in its sole and independent discretion. By making a donation, I confirm that I will receive no tangible benefit or privilege from either CAF America or any suggested nonprofit in return for my donation.
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